Who are the Arthrogryposis Association of Ireland?
We are a national support group of people who have an interest in Arthrogryposis Multiplex Congenita (AMC) including people with AMC and their partners or family members, and parents of children with this impairment, providing peer support on a voluntary basis.
We are a National Association, originally formed by a small group of parents who first came together in October 1983. During their discussions, it became apparent that there was a need for a more formal structure whereby parents and those with AMC could seek advice, raise awareness of the impairment and promote research. Our first Annual General Meeting was held in 1983 and so our Association was formed.
We have since evolved into a group which now serves the needs of a cross-section of people, including both children and adults with AMC, parents of adults with the impairment and new parents whose children have been diagnosed with the impairment.
We offer support to new parents of children with AMC, by other parents or adult members with AMC, either face to face, or over the phone whatever is the most comfortable for the family. One of our biggest achievements to date has seen AMC included in the range of disabilities and illnesses for the Long-term disability card. Some of our long-term aims outside of our support role are:
- To promote education and research on Arthrogryposis and to keep records on the impairment
- To promote the independence of persons with Arthrogryposis and seek to ensure that they achieve their full rights and potential
We have annual meet-ups in different locations around Ireland which give families and individuals an opportunity to meet, get to know each other and share experiences along with providing some fun on the day. If you would like to come along, or get involved there are many ways to reach out to us: