The Association has an active Executive Committee and the immediate aims are:
1. |
To be a contact and support group for persons suffering from Arthrogryposis and for the parents of children with Arthrogryposis. |
2. |
To promote education and research on Arthrogryposis and to keep records on the condition. |
3. |
To promote the independence of Arthrogryposis persons and to seek to ensure that they achieve their full rights and potential. |
4. |
To ensure that Arthrogryposis is listed by the Department of Health in the Long Term Illness Scheme. |
The first meeting of parents of children with Arthrogryposis took place in Athlone in October 1983.
It was initiated by a small group of interest parents. During the discussions, it was apparent that there was a need for a formal structure, whereby parents and those with Arthrogryposis could seek advice and counseling, create an awareness of the condition and promote research into the condition.
The first A.G.M. was held in November, 1983, and a constitution was prepared. It was formally adopted in March 1984.
Early in 1984 discussions took place with the Department of Health and The Children Hospital, Temple Street, Dublin 1.
It was agreed that Temple Street Hospital be the National Referral Centre, and that it would provide comprehensive medical and orthopedic facilities. It was proposed that this Centre will work closely with The Central Remedial Clinic in Clontarf,
and that it will offer supportive medical, paramedical and educational help and guidance.
The Secretary
Arthgryposis Association of Ireland
Cor-na-Gark
Kilcormac
County Offaly
Tel: 057-9135152
E-mail: enquiries@arthrogryposis.ie
We are always looking for new members to help the Charity with fundrasing and organising events.
If you feel like you could make a difference to the Arthrogryposis Association of Ireland then we would love to hear from you.
Registered Charity Number: CHY9376